Noah woke up this morning, went to the bathroom, and came straight into my bed. He snuggled right into me and pulled up the covers over his head. He loves to snuggle.
Nate and Nick did not enjoy snuggle time. Nick tolerated it better than Nate, but neither of them enjoyed it the way Noah does. Nate actually did not like to be snuggled. When he would cry, hugging never consoled him. It often upset him ever more. Even to this day, he does not like to be touched. He will tolerate a hug, but that is all...he tolerates it. Nick snuggled for a while as a toddler, but quickly outgrew it.
Noah's sensory dial is very different than his brothers'. He touches everything and everyone. If you are sitting on the couch, he will come in and sit rightnexttoyou. He starts by sitting next to you, then he's leaning on you, and eventually he is on top of you. He has always craved that input. He responds well when the staff brushes him and does the joint compressions. When he is laying with us in bed, he often maneuvers himself so he is under us. He really likes the weight on him.
When Noah comes in the morning to snuggle, I know it's a sensory need and not an emotional need. However, the mommy in me prefers to think it's emotional.......
Wednesday, April 24, 2013
Tuesday, April 2, 2013
World Autism Awareness Day
I've been very reflective today. Not that I don't think about autism all the time.......Usually, when I think about autism, I'm bitter....and mad. Today I am grateful.......
Not grateful for the autism......I'm not crazy....but grateful for the the help and support that the boys receive. We wouldn't be where we are today without all that help. We are lucky that we live in a city that has resources to help the boys.
I feel sorry for the families who live in small towns and don't have good resources. It must be so frustrating for those moms that know what help their child needs, but can't find it within a 30 mile radius of their house. Maybe Autism Speaks needs to create an outreach program to help these families.
I am grateful that Nate and Noah attend a school for special kids. It's such an amazing place! I feel sorry for the kids whose parents insist on keeping in the mainstream school when there are other avenues to consider. Regular high school or middle school is not always the best placement for a child who will not be able to live independently. I do not understand why some parents think that memorizing the President's of the United States is a better use of their child's time than learning life skills. I know it's more expensive to educate a child in come special schools, but what happened to doing what's best for kids? What will happen to that child when they turn 18? I'm afraid the parents will not have done what is best for their child's quality of life.
I hope that soon the Autism Bill becomes a federal law. It's a shame that families in Missouri who have a federal health insurance policy and not a Missouri policy do not get the benefits. I think it should be available to all families in the United States, regardless of their insurance carrier.
We are so lucky to have Team Hill! We have 11 people who care about the boys and work very hard to help them reach their goals. Yes, the autism sucks, but the people who have helped us throughout the years have been amazing. We are lucky to have them. Let's hope that all families affected by autism have such a team.
Not grateful for the autism......I'm not crazy....but grateful for the the help and support that the boys receive. We wouldn't be where we are today without all that help. We are lucky that we live in a city that has resources to help the boys.
I feel sorry for the families who live in small towns and don't have good resources. It must be so frustrating for those moms that know what help their child needs, but can't find it within a 30 mile radius of their house. Maybe Autism Speaks needs to create an outreach program to help these families.
I am grateful that Nate and Noah attend a school for special kids. It's such an amazing place! I feel sorry for the kids whose parents insist on keeping in the mainstream school when there are other avenues to consider. Regular high school or middle school is not always the best placement for a child who will not be able to live independently. I do not understand why some parents think that memorizing the President's of the United States is a better use of their child's time than learning life skills. I know it's more expensive to educate a child in come special schools, but what happened to doing what's best for kids? What will happen to that child when they turn 18? I'm afraid the parents will not have done what is best for their child's quality of life.
I hope that soon the Autism Bill becomes a federal law. It's a shame that families in Missouri who have a federal health insurance policy and not a Missouri policy do not get the benefits. I think it should be available to all families in the United States, regardless of their insurance carrier.
We are so lucky to have Team Hill! We have 11 people who care about the boys and work very hard to help them reach their goals. Yes, the autism sucks, but the people who have helped us throughout the years have been amazing. We are lucky to have them. Let's hope that all families affected by autism have such a team.
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